Ehlers-Danlos syndromes (EDS) are a collection of genetic disorders that affect connective tissue. People who have EDS have problems with their collagen, a protein that adds strength and elasticity to connective tissue. This faulty collagen affects many body parts, including skin, muscles and ligaments.

Learn About Ehlers Danlos

EDS Interested Doctors

> Doctors for Patients

> NYC Doctors

Medical Professionals Directory

> Directory

Complications

> Ehlers-Danlos Syndrome: Complications and Solutions

Cranial Instability

> What is Craniocervical Instability?

Dental

> Disconnected... Ehlers-Danlos syndrome: Some symptoms point to a need for greater awareness among dental professionals

Digestive Issues

Food Allergies

> Food Allergy Common in Joint Disorder

General Information:

> 15 'Embarrassing' Symptoms of Ehlers-Danlos Syndrome We Don't Talk About

> Brain injury unmasking Ehlers-Danlos syndromes after trauma: the fiber print.

> Article from SEN about EDS.

> What is CINK and how can it help patients with Ehlers-Danlos Syndrome?

> One woman's journey through life with invisible illnesses

> Ehlers-Danlos Syndrome.....Oh That is Why I am so Tired!

> Ehlers Danlos syndrome in dogs (Dermatosparaxis,Cutaneous Asthenia)

> Famous People with Ehlers Danlos Syndrome

> Ehlers-Danlos Syndrome (EDS) at a Glance

> If You Can't Connect the Issues, Think Connective Tissues (Heidi Collins, MD)

> Ehlers-Danlos Syndrome: An Unexpected Genetic Finding

> How to prepare for your appointment

> EDS in practice

> CE: Nursing Management of Patients with Ehlers–Danlos Syndrome

> So That is Why I Am So Tired!

> Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and Mast Cell Activation

> One Gene Mutation Links Three Mysterious, Debilitating Diseases

> 2017 EDS International Classification: Your Questions Answered

> EDS Types

> 2017 EDS Classification - Your Questions Answered

> Gardening Tips Living with Ehlers-Danlos Syndrome

What is eds like?

> My Wife Had EDS and Did Not Know it!

> What is Ehlers-Danlos Syndrome?

> Learn more about Ehlers- Danlos Syndrome - (EDS)

Inflammation

> A Vegan Diet Can Help Heal Persistent Inflammation in Ehlers Danlos

Footcare

> Footcare

Genetic Testing

> Genetic testing

How to Live With

> Standard of Care: Ehlers-Danlos Syndrome

EDS and MS

> Coexistence of Ehlers-Danlos syndrome and multiple sclerosis

Gastroparesis 

> New Program Offers Multidisciplinary Treatment and Hope to Patients with Gastroparesis

Hypermobile

> Patients suffering from Ehlers-Danlos syndrome type III do not respond to local anaesthetics

> Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations

> Ehlers-Danlos Syndrome, Hypermobility Type

> Re-writing the natural history of pain and related symptoms in the joint hypermobility syndrome/Ehlers-Danlos syndrome, hypermobility type.

> Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articular, and Systemic Manifestations

> Ehlers-Danlos Syndrome Hypermobility Type: A Genetic Predisposition to the Development of Various Functional Somatic Syndromes

> Ehlers-Danlos Syndrome Hypermobility Type: A Genetic Predisposition to the Development of Various Functional Somatic Syndromes  REPEAT

> Ehlers-Danlos Syndrome, Hypermobility Type, Is Linked to Chromosome 8p22-8p21.1 in an Extended Belgian Family

Issues With Children

> Why Child Abuse Allegations and Ehlers Danlos Syndrome Can Create 50 Shades Of Grey

> How Can Schools Better Understand Ehlers Danlos Syndrome?

> How to Help Schools Understand Ehlers Danlos Syndrome

> Preparing the School for Your Child with Ehlers-Danlos Syndrome

> AN EDUCATOR’S GUIDE Meeting the Needs of the Ehlers-Danlos Child

Magnesium Deficiency

> Magnesium and Ehlers-Danlose Syndrome part one

Muscles Issues

> Handwriting difficulties, low muscle tone, joint hypermobility and DCD

Mast Cell Activation Diseases

> MCAD Resources

> Penn Dental Medicine Professor Unlocks the Mysteries of Mast Cells

Neurological Issues

> Neurological manifestations of Ehlers-Danlos syndrome(s): A review

Nutrition

> Nutritional, Therapeutic Strategy for Ehlers–Danlos Syndrome

> Ehler’s Danlos Syndrome and Copper Dysregulation

Pseudo-psychiatric Symptoms

> Dr. Alan G. Pocinki "Pseudo-psychiatric Symptoms in Ehlers-Danlos Syndrome"

Pain

> What Pain Feels Like For Someone With Ehlers-Danlos Syndrome

> 5 Amazing Facts About Cannabis

> EDS-Learn about your pain

> Ehlers Danlos Syndrome - Cannabis Symptom Relief

> EDS and cannabis success

> Pain in Ehlers-Danlos Syndrome Is Common, Severe, and Associated with Functional Impairment

> Cannabis for the treatment of Ehlers Danlos Syndrome

Pots

> Ehlers-Danlos Syndrome, Mast Cell Activation and POTS –  Oh! That’s Why I‘m So Tired!!

> Dysautonomia, POTS, Ehlers-Danlos and Joint Hypermobility

> POTS: A Mysterious Syndrome That Can Turn Your Life Upside Down

> Overview of POTS Syndrome

Pregnancy

> Pregnancy and Delivery in Ehlers-Danlos Syndrome (Hypermobility Type): Review of the Literature

Physician Education

> Overview | Ehlers-Danlos Syndromes Physician CME Education

Pulmonary Issues

> Asthma and airways collapse in two heritable disorders of connective tissue

> Sleep-Disordered Breathing in Ehlers-Danlos Syndrome

Skin

> Skin in JHS and EDS

Surgery

> How to Stop Hospital Horrors

> Recommendations for anesthesia and perioperative management in patients with Ehlers-Danlos syndrome(s)

Traveling

> Suggested medical work-up for those traveling to see Ehlers Danlos specialists

> Ehlers-Danlosair Ambulance Services

The Gut

> EDS and Stomach Pain: “Why being double-jointed can be a pain in the gut.”

Wounds

> Cannabis for wounds and injuries

Vascular

> Role of smooth muscle cells in vascular Ehlers Danlos Syndrome

Other Helpful Resources

> Other Helpful ideas for wherever you live:

> Other Helpful information for you if you live in Rhode Island or nearby

> Medical Assistance Ultimate Directory

> Request a Flight

> Spoons & Stripes

> Ehler’s Danlos Syndrome and Copper Dysregulation

> The Ehlers-Danlos Syndromes Toolkit

Caring for Someone with EDS

> Caring for Someone with EDS

Articles by Ellen

> 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos

> ER Safety Tips for Ehlers-Danlos Syndrome Patients

> How to Successfully Use Manual Therapy with EDS

> A Safe Way to Healthy, Restorative Sleep

> Tips on Living with POTS

> The Advantages of Having a Service Dog

> Why You Should Consider Medical Marijuana

> 3 Tips to Help Control Inflammation

> How to Prepare for a Scheduled Hospitalization

> 13 Tips for Living with Gastroparesis

> How to Stop Hospital Horrors

> How to Prepare for a Scheduled Hospitalization

> Safety Tips for Living with Ehlers-Danlos Syndrome

> 8 Tips for Living with Chronic Pain

> Staying Positive But Still Needing Support

> 7 Tips for Peace and Calm in the Busy Holiday Season

> How to Stop Hospital Horrors

> Living with Ehlers-Danlos? Tips to help improve Your Quality of Life

> ALFALFA – My Unexpected Miracle for Motility Issues Living With Ehlers-Danlos Syndrome

 > Tips on Dealing with the Stigma of Using Cannabis

 > Advocating for Ehlers-Danlos

 > 10 Things I Wish People Understood About Service Dogs

 > Caution: EDS – Handle With Care